Neurofibromatosis: A Disgusting and Really Painful Neurological Disorder

Son Dakika

In this random blog, I would also write about science and medical articles when I feel like it. I'd like to recall the amazing story of Chandra Wisnu from Indonesia, whose wife never left him even after he became "infested" with the bubbles. There's so much ignorance about neurofibromatosis. For starters, it's not contagious as it's actually a genetic disorder.

For the overview, the Mayo Clinic gives this definition and why it's not just disgusting but also painful, which makes it more unbearable than a scar left behind:

Neurofibromatoses are a group of genetic disorders that cause tumors to form on nerve tissue. These tumors can develop anywhere in the nervous system, including the brain, spinal cord and nerves. There are three types of neurofibromatosis: neurofibromatosis 1 (NF1), neurofibromatosis 2 (NF2) and schwannomatosis. NF1 is usually diagnosed in childhood, while NF2 and schwannomatosis are usually diagnosed in early adulthood.

The tumors in these disorders are usually noncancerous (benign), but sometimes can become cancerous (malignant). Symptoms are often mild. However, complications of neurofibromatosis can include hearing loss, learning impairment, heart and blood vessel (cardiovascular) problems, loss of vision, and severe pain.

Neurofibromatosis treatment focuses on encouraging healthy growth and development in children who are affected by the disorder and on early management of complications. When neurofibromatosis causes large tumors or tumors that press on a nerve, surgery can reduce symptoms. Some people may benefit from other therapies, such as stereotactic radiosurgery or medications to control pain. A new medication is available to treat tumors in children, and other new treatments are being developed.

I was looking at the stories of neurofibromatosis victims. It's no surprise that these are very painful as it's the nerve tissues. I got disgusted looking at the images of people with tumors all over their bodies. Some develop really huge tumors that will disrupt their work. Some even have tumors that are covering their face, making it hard to breathe, eat, and see. It's not just disgusting to look at. The real disgust factor is that people inflicted with it are going to suffer not just from ignorance but also from the tumors themselves.

Bigger awareness is needed for this disorder. People need to know that those who have it, aren't contagious, and need help through surgery. I doubt there will be a complete cure but one can make lives for those afflicted by it, live better.

Learning About Jose Rizal's Chinese Ancestry (and Blood) Back in High School (and College)

JoseRizal.com Today is Rizal Day, and I found myself admiring him. I don't have his level of genius. Some people often joked that they practiced the Rizal hairstyle. He was only 5.28 feet, which may have been considered tall at that time compared to today's standards. This takes me back in time when my Filipino teacher (forgot her full name) asked, "Do you have to be born a Filipino to be truly Filipino. If we must accept it, Rizal's blood was Chinese." Rizal would be a Chinese mestizo. Look into his history. Rizal's great-great-grandfather was a Chinese immigrant . Those questions forever shook my mind slowly but surely. I'm Chinese by blood, but I was born in the Philippines to Filipino citizen parents, even if my great-grandparents were mostly from China. Concerning Rizal's ancestor, this is an interesting detail: Domingo Lamco: A Beacon of Resilience Domingo Lamco, also known by his Chinese name Cua Yi-Lam (“Ke Yi-Nan” in Mandarin), was a trailbla...

Filipinos Calling Indians as "Bumbay"

The song "Dayang Dayang" was given a parody cover called "Dayang Daya". Oftentimes, the song "Dayang Dayang" is thought to be Indian. Instead, it's arguably said to be from Muslim Mindanao or was brought in either from Malaysia or Indonesia. Historically, some of the settlers in the Philippines were Malaysians and Indonesians. So, it's probably safe to say that most Filipinos of brown skin descent are mixed Malay and Indonesian. I was even reminded how I mistook a Malaysian woman for a Filipino woman. Back on topic, the parody song has an introduction that says, "Kami Bumbay galing sa India..." (We're Bombay coming from India). I even tend to refer to Indians as Bombay--something I ended up tactlessly saying during my first trip to Singapore. Many times, Filipinos tend to use Bumbay not as a racial slur but to simply refer to an Indian. Some Filipino-Indians don't even mind being called Bumbay for a reason. I guess they got accust...

Ifugao OFWs in Taiwan and Discovering More About One's Common Austronesian Roots

I was doing some research on Taiwan finding out that the natives are indeed Austronesians . It seems that Indonesians and Malaysians may have also settled in Taiwan aside from the Philippines. A look at Mt. Alishan and Banaue Rice Terraces have a similarity. Taiwan has its famous tea terraces. Banaue has its famous rice terraces. Both are cultural heritages that must be preserved! I soon found an article which Ifugao OFWs in Taiwan. Not surprisingly, these Ifugao OFWs can point out several things that are pretty similar. An article called " A Gotad Picnic With Ifugaos Living in Taiwan " would tell of Armand Camhol, an Ifugao OFW, who met with other Ifugaos in Taiwan. Gotad is a thanksgiving festival for the Ifugaos. The News Lens International Edition What was noted by Armand at the end of the article is: The people of Ifugao value hospitality, and as a symbol of friendship, they shared their holiday with their invited guests, who, in return, sang, joined the dances, and made...

A Critical Review of "The Flor Contemplacion Story"

VIVA Films uploaded The Flor Contemplacion Story on YouTube last February 13, 2024, at 9:00 A.M.. Yes, I didn't notice it since I saw it before, and it was one incredibly awful film. The film has been remastered into HD to fit with the times. However, in the age of social media and the like, any old piece of truthful information can be later revealed. It's not about the age of the information but the truthfulness of it. In this information age, one can easily upload any undiscovered truth in the past. That also includes that one of Cebu's bad boys in the past, Francisco Juan "Paco" G. Larrañaga, was innocent of the crime involving the Chiong sisters. In 2018, VIVA Films also released a movie called Jacqueline Comes Home which I may watch and review. Though I've already seen Give Up Tomorrow, which has been more objective since there was evidence that Paco was indeed in Manila and that real perpetrators haven't been found. Normally, the best way to rev...

The Three Drug Mules Executed in China Last March 30, 2011

Al Jazeera Today is March 30, 2026. It has been 15 years since the execution of the three drug mules. Their names are Sally Ordinario-Villanueva, Ramon Credo (who was cremated in China shortly after his execution), and Elizabeth Batain (whose face was never revealed, perhaps due to the loved ones requesting more privacy). Contrary to what one might think, the three drug mules weren't a trio. Instead, they were three separate cases that just happened to be scheduled to die on the same day. They weren't a trio. They had a temporary reprieve when former vice president Jejomar Binay tried to save them . Villanueva, together with Ramon Credo and Elizabeth Batain, was scheduled to be executed last month but got a reprieve after Vice President Jejomar Binay traveled to China and personally appealed to Chinese authorities. BBC News even gave such a short news report, that I felt compelled to copy/paste the whole time as a reference here: Philippine Vice-President Jejomar Bin...

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